The post Community Survey: Tell the FDA about Your Parkinson’s appeared first on Parkinson's Action Network.
The Parkinson’s Action Network (PAN) thanks the hundreds of people with Parkinson’s and caregivers who participated in the Food and Drug Administration (FDA) Patient-Focused Drug Development meeting.
The meeting generated important discussions between the FDA and two panels of people with Parkinson’s and caregivers. A recording of the meeting will be made available on the FDA and PAN websites in the next couple of weeks.
However, our work is not done.
Help Us Share Additional Information with FDA
In order to ensure a wide range of experiences with Parkinson’s disease directly impacts the FDA’s work, PAN and our Unified Partners invite you to take a survey to share your experiences. Survey data will be compiled and submitted as part of the FDA open docket to collect patient and caregiver information.
Whether you attended the meeting in person, online, or did not attend the meeting, your voice is needed!
This community-wide survey consists of 17 questions based on those initially posed by FDA for the September meeting. No personally identifiable information will be collected, and your responses will remain anonymous. The survey is designed to be taken in approximately 15-20 minutes, but you may take as much time as needed. The deadline to take the survey is October 30, 2015.